Texas Health and Safety Code - HEALTH & SAFETY § 52B.004. Department Powers;  Rules

(1) execute necessary contracts;

(2) receive data from health care facilities concerning sickle cell disease cases to record and analyze the data directly related to the disease;  and

(3) compile and publish statistical and other studies derived from data obtained under this chapter to provide, in an accessible form, information useful to physicians, other medical personnel, and the public.

(1) obtain data from health care facilities regarding sickle cell disease cases;

(2) require consent of an individual or the individual's legally authorized representative before any information relating to the individual is included in the sickle cell disease registry;

(3) allow the individual or the individual's legally authorized representative to withdraw consent for inclusion of the individual's information in the registry;

(4) protect the confidentiality of individuals diagnosed with sickle cell disease in accordance with Section 159.002, Occupations Code;  and

(5) ensure the registry is developed in a manner consistent with: