Florida Statutes Title XXIX. Public Health § 381.814. Sickle Cell Disease Research and Treatment Grant Program

(a) “Center of excellence” means a health care facility dedicated to the treatment of patients with sickle cell disease which provides evidence-based, comprehensive, patient-centered coordinated care.

(b) “Department” means the Department of Health.

(c) “Health care practitioner” has the same meaning as provided in s. 456.001.

(d) “Program” means the Sickle Cell Disease Research and Treatment Grant Program.

(e) “Sickle cell disease” means the group of hereditary blood disorders caused by an abnormal type of hemoglobin resulting in malformed red blood cells with impaired function. The term includes both symptomatic manifestations of sickle cell disease and asymptomatic sickle cell trait.

(a) Improve the health outcomes and quality of life for Floridians with sickle cell disease.

(b) Expand access to high-quality, specialized care for sickle cell disease.

(c) Improve awareness and understanding among health care practitioners of current best practices for the treatment and management of sickle cell disease.

(a) Sickle cell disease workforce development and education.--Such projects shall include, but need not be limited to, facility-based education programs, continuing education curriculum development, and outreach and education activities with the local health care practitioner community. Workforce development and education projects must be based on current evidence-based clinical practice guidelines for sickle cell disease.

(b) Sickle Cell Disease Treatment Centers of Excellence.--Such projects shall include, but need not be limited to, operational support for existing centers of excellence, facility enhancement of existing centers of excellence, and the establishment of new centers of excellence.

(a) By July 15, 2024, publicize the availability of funds, establish an application process for submitting a grant proposal, and initiate a call for applications.

(b) Develop uniform data reporting requirements for the purpose of evaluating the performance of the grant recipients and demonstrating improved health outcomes.

(c) Develop a monitoring process to evaluate progress towards meeting grant objectives.

(a) A summary of the project and the project outcomes or expected project outcomes.

(b) The status of the project, including whether it is completed or the estimated date of completion.

(c) The amount of the grant awarded and the estimated or actual cost of the project.

(d) The source and amount of any federal, state, or local government grants or donations or private grants or donations funding the project.

(e) A list of all entities involved in the project.